EoE and Me.

How it all started…


I have been diagnosed with a disease called eosinophilic esophagitis. EoE is a recognized chronic allergic/immune condition of the esophagus. With this disease, a large numbers of white blood cells called eosinophils are found in the inner lining of the esophagus. Eosinophils can release substances into surrounding tissues that cause inflammation. Normally there are no eosinophils in the esophagus. A person with EoE will have inflammation and increased numbers of eosinophils in the esophagus. The chronic inflammation of EoE leads to symptoms. In my case, the inflammation leads to narrowing of the esophagus, which leads to food impaction. I've currently had two surgeries to remove impacted food from my esophagus. After multiple scopes and biopsies, my doctors have determined my issues are caused by food allergies. Through blood and skin testing, we have discovered I am allergic to milk, wheat, fish/shellfish, nuts, carrots, and sweet potatoes. These foods not only cause narrowing of my esophagus. They also cause rashes, swelling, heartburn, abdominal pain, nausea, vomiting, diarrhea, headaches, and fatigue. I don't usually get all these symptoms at once, but I will get a few at a time. As long as I avoid the things I shouldn't eat, I don't get any symptoms. My doctor told me this is something I will live with for the rest of my life. They have recently approved the first medication for EoE, dupixent, which is a once a week injection that helps with esophageal inflammation. I am trying to keep my issues at bay with my strict diet. I am hoping I don't get to the point where I need the injections. I've done a lot of research on the medication. A lot of people seem to develop eye issues; such as pressure build up and vision changes. I just don't think the medication is worth it at this point for me. With changing my diet, I have already lost 20 pounds. I feel so much better. My mood is better. I sleep better. I no longer feel the need to binge eat. It's been a struggle, but it's all been worth it. 

I just wanted to give a little information on what's been going on with me. I am really hoping this blog will help at least one person not feel alone in their EoE journey. 


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